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Author Topic: New to this! :)  (Read 71 times)
CarsonsMama
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« on: January 31, 2009, 12:20:10 am »

Hi!! Im really new to all this... And not even sure if anyone even still gets on here but, here goes Smiley

My dad had hemophilia A and contracted HIV and Hepatitus along with most hemophiliacs of his time and now I have a son who is severe hemophilia A... Im truely terrified and even tho I know if it hadnt been for the transfusions being how they were my dad would have been fine, I still worry.. Not to mention my dad was a moderate case so Carson being Severe is just that much more scary! Would LOVE to hear from someone who actually deals with this instead of just reading a bunch of generic websites lol!

Thanks
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MissTara
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« Reply #1 on: March 08, 2009, 10:04:22 am »

i'm so sorry to hear about your dad. ((hugs))
i had two uncles that were type A and were given the transfusions, they were also given HIV and have both been gone for 20 and 16 years. i am pregnant with my first and although we don't plan on getting any prenatal testing done we're hoping to have a healthy child.
growing up around my uncles all i knew was them getting their factor treatments, although i know now things are done much differently. unfortunately this board is pretty slow, i wish we had more people coming through here.
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