Finally! we're moving forward!  http://www.medpagetoday.com/PublicHealthPolicy/StemCellResearch/13133

i'm so sorry to hear about your dad. ((hugs))
i had two uncles that were type A and were given the transfusions, they were also given HIV and have both been gone for 20 and 16 years. i am pregnant with my first and although we don't plan on getting any prenatal testing done we're hoping to have a healthy child.
growing up around my uncles all i knew was them getting their factor treatments, although i know now things are done much differently. unfortunately this board is pretty slow, i wish we had more people coming through here.

that's a really great question.  since i don't have kids yet i'm wondering, what are the downsides to the port? are they only for infants, or can they be used throughout life?

thank you for joining!! please spread the word if you can!!

1. Nothing is censored on this site, but I ask you to still please be respectful of others and of the topics raised in the forums.
2. No personal attacks, you will be warned, then banned if it continues. (Don't bother making a new account because i can see your IP address)
3. Follow 1 & 2 and we'll be fine.


Have fun everyone!

Welcome to the Hemophilia Family and Friends Support Group

This site is dedicated to those living with, carriers of and family and friends of those affected with Hemophilia!
All thoughts and comments are welcome, please just be respectful.
The reason this site was created simply is because I myself am a carrier of Type A Hemophilia, am married and will soon be starting a family.  There are not may online communities dedicated to Hemophilia and I am hoping that a wonderful dialogue can happen here.
Looking forward to talking with everyone!
~MissTara