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Title: New to this! :) Post by: CarsonsMama on January 31, 2009, 12:20:10 am Hi!! Im really new to all this... And not even sure if anyone even still gets on here but, here goes :)
My dad had hemophilia A and contracted HIV and Hepatitus along with most hemophiliacs of his time and now I have a son who is severe hemophilia A... Im truely terrified and even tho I know if it hadnt been for the transfusions being how they were my dad would have been fine, I still worry.. Not to mention my dad was a moderate case so Carson being Severe is just that much more scary! Would LOVE to hear from someone who actually deals with this instead of just reading a bunch of generic websites lol! Thanks Title: Re: New to this! :) Post by: MissTara on March 08, 2009, 10:04:22 am i'm so sorry to hear about your dad. ((hugs)) i had two uncles that were type A and were given the transfusions, they were also given HIV and have both been gone for 20 and 16 years. i am pregnant with my first and although we don't plan on getting any prenatal testing done we're hoping to have a healthy child. growing up around my uncles all i knew was them getting their factor treatments, although i know now things are done much differently. unfortunately this board is pretty slow, i wish we had more people coming through here. |